Outside he beats on the car and tries to mouth it, then
grasps the door handle like I’ve taught him how to do. “You want to go for a
car ride?” I think I hear him say “uhm.” I load him and Rudy into the car and
remove Calvin’s glasses to prevent him from yanking them off sideways then
bending and chewing them the way he’s prone to do.
I choose a favorite route past Maquoit Bay where the tide is
low and clam diggers are out breaking their backs in the beautiful muck under a
powdery blue sky. We pass clusters of prickly shrubs encrusted with bright red
berries, the kind I braided with my friend Joanie's grape vines when I made holiday
wreathes a few winters ago. There’s a big weeping tree leaden with yellow apples like some kind of golden goose eggs, and a tangled one with fruit the
color of ripe persimmons.
A winding road leads us by huge weathered barns and
countless stacks of baled hay, some shrink-wrapped in thick white plastic like
shining colossal marshmallows. All the while I’m reaching back to bat Calvin’s
index finger out of his eye or telling him not to stare at the sun, something
he does every chance he can get, no matter how small the sliver of light.
At the crest of a hill I spot my friends standing in the
narrow shoulder with their bikes, helmeted up and dressed in the tight, bright
regalia of cyclers these days. I don’t want to startle them with a honk so I
wave but they don’t see me. I wonder where their kids are, what they’ll be
doing this glorious fall weekend.
A mile or so further we approach the farmer’s market. We
used to go there every Saturday years ago, before Calvin started having
seizures and when he was more willing to walk some. Now he just wilts in the
sun or laughs so hysterically in it that he collapses, can’t even stand up on
his own. And I still fear the seizures. Honestly, the experience is a bittersweet one. I enjoy seeing the colorful produce, listening to the folky fiddles and guitars,
hearing the hubbub that is the marketplace, treating myself to one of Barack’s
sweet, crispy almond pastries. But it’s painful, too. All those healthy kids
running around, eating cookies, petting dogs, jigging to the music, making new
friends, weaving in and out between puttering adults whose hands are free to select
pints of cherry tomatoes, discs of pungent goat cheese wrapped in plastic,
hard, heavy butternut squash, farm fresh eggs and fragrant loaves of
artisanal breads. Their kids help them tote heavy bags of the stuff to their
cars, even the little ones do. At times it’s too much to take in, too much
revelry, too much “life is good” going on, which is not to say that I don't
love my life, but rather, I'd love my life more if Calvin was healthy. And so
we sail on by while my boy pokes his eyes, completely oblivious to what he is
missing.
As we make a sharp right onto our street, follow its mild
curve to the left, Calvin becomes animated. We’re told he can’t see squat
without his glasses but somehow he knows we are almost home. It must be the
feel of that particular turn at the particular speed we take it, or perhaps
it’s the pattern of familiar arching trees that he can make out through the
sun-roof. Whatever his method, he knows, and he kicks and squeals the whole way
down the street until we pull in to our favorite place in the world, which, of
course, is home.
In honor of epilepsy awareness month please share this story with others. Help bring us one step closer to a cure.
In honor of epilepsy awareness month please share this story with others. Help bring us one step closer to a cure.
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