We were packed into the grocery store like sardines, a sea
of mostly gray-haired, shuffling retirees, a few students and some young
parents, pushing carts down aisles clogged like fatty veins, each with our own
bumper car loaded up with shiny shrink-wrapped turkeys, plastic bags of
stuffing mix, sacks of potatoes, cranberries, pecans, pie crusts and tins of
mashed pumpkin.
I squeezed my way toward the checkout lanes, a virtual
salmon swimming upstream, paid for my bagged groceries and jumped through the automatic door. Leaving the parking lot my progress stalled by two large
neon-yellow vehicles, one fire truck and the other an ambulance. Rubberneckers
paused at the crosswalk to ogle the spectacle before merging into the busy
traffic on Maine Street.
Eventually it came my turn to witness the scene beyond the
flashing white and red lights and buffed chrome. At first glance, feeling a
sharp twinge, I thought sure the paramedics were lifting a child onto the
gurney but as I got closer I realized it was the head, braced neck and
shoulders of a youngish bicyclist. She winced with a grimace of what looked
like shock and pain, though might have been described as fear, even
embarrassment, I couldn’t be sure. Behind the medics rested her mangled
one-speed bike, the kind I used to ride as a child, powder blue, one of those
heavy types. Its tires were twisted, warped into some wavy Salvador
Dali version of a spoked wheel. An arm’s length from the victim stood an
elderly woman wearing a blotchy, tense expression. Frizzy white hair framed her
distressed face, one hand leaning precociously on the plastic handle of her
metal cane, the other dabbing nervously at her face, her mouth,
strands of her hair. She was white as a ghost. I assumed she was the driver,
worry etched into her features in some crazy, clownish mask.
I know worry, I thought, the kind that gnaws at
the core of my being, chips away at my spirit like relentless, dripping water wears a pit into soft stone. This worry never really escapes me—this watching,
waiting, fearing my child’s next seizure. It’s omnipresent—scratching sharply
just under the surface, carving ragged ruts into my brow, tearing bits out of my
cuticles. The fretful feeling I get is similar to sick coffee jitters and shirking it feels as hopeless
as attempting to outrun a train.
Try as I may I cannot seem to flush it from
my marrow. This constant worry slices through me like a web of lasers,
sometimes strangles me as if a noose, a straitjacket, or some kind of
suffocating mummy suit that affords only tiny holes for seeing, two smaller
ones for me to eke out a breath if I can manage it. At times it has the weight
of a huge rock resting on my chest. But mostly its harm is dark and erosive, feels as though something evil is peering
over my shoulder, breathing down my neck.
If it weren’t for the seizures that make my son choke
and writhe, and the drug side effects that cause him to dizzily
careen sideways, his head missing a rock or the cast iron radiators by mere inches, or
causing him to refuse food so that now we’re seeing his ribs, can count every
vertebra, I think I’d have less trouble climbing out of this well of worry, might not have fallen in to begin with.
And so I felt for these two roadside casualties, but somehow,
strangely, more for the disabled woman standing there on the curb watching her
poor victim be carted away with sirens, sorry for the dread she must have been
feeling having struck a soft being with a huge chunk of speeding metal. I felt
sorry for this unfortunate woman whose life might have just taken a profoundly
crooked turn right before her blinking eyes, the broken body under her wheels.
And then, a few blocks from home I passed a beautiful brunette girl named Emily
who walks miles each day on our town’s streets, sometimes spinning as she goes,
her arms out to her sides like a whirlybird or as if about to launch into a cartwheel.
Some might describe her as simple-minded, this girl—woman, really—of few words. She appears to have no concept of worry, of dread, and so I envy her at the same
time being thankful for the occasional reminder of her happy presence ambling down the street as I pass. She
makes me think of Calvin who, except when he has seizures or feels the drugs’ ills, seems not to have a care in the world, weaving through life’s struggles as easily as a fish swimming
downstream, effortlessly coasting with only a smile on his perfectly
smooth, worry-free face. And somehow, just knowing that makes my own angst dissolve into a cool clear pool,
if only for a moment.
In honor of epilepsy awareness month please share this story with others. Help bring us one step closer to a cure. It's as easy as pushing a button.
In honor of epilepsy awareness month please share this story with others. Help bring us one step closer to a cure. It's as easy as pushing a button.
photo by Michael Kolster |
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