8.18.2013

these nine years (in no particular order)

loss
developmental delay
low muscle tone
neurologists
ventriculomegaly study
reglan
drooling
seizures
love
MRIs
trileptal
physical therapists
anger
nystagmus
appreciation
bruises
erythromycin
ear infections
pneumonia
breakdowns
sleep deprivation
choking
ear infections
visually evoked potentials
fatigue
bronchitis
adoration
hospitals
speech and language pathologists
pain
endocrinologist
despair
pharmacies
keppra 
outbursts
neuro-ophthalmologist
insomnia
pediatric intensive care unit
esotropia
lactulose
atavan
spit ups
kidney sonograms
teacher for the visually impaired
multiple 24 and 72 hour EEGs
nuclear medicine
hugs
depakote
slow gastric emptying
diastat
circumcision
therapy
febrile seizures
occupational therapists
gluten free casein free diet
thankfulness
gastroenterologists
lamictal
lung X-rays
cyanosis
urologists
general anesthesia
gratitude
arguments
zonegran
diapers
status epilepticus
antibiotics
yeast eradication
monotony
emergency rooms
screaming
nausea
clonazepan
blood draws
status epilepticus
sweetness
sleep study
disappointment
pharmacies
insurance nightmares
inertia
suppositories
pervasive developmental delay not otherwise specified
autism spectrum
anesthesia
affection
hiatal hernia
withdrawal seizures
ataxia
dizziness
missed opportunities
envy
suffering
nephrologist
colonoscopy prep for impaction
constant worry
neurontin
pediatrician
smiles
911
ataxia
pulmonologist
expectation
medically refractory epilepsy
intestinal X-rays
carnitor
happiness
forgiving
paperwork
research
tears
nightmares
ambulances
vitamin B6
grief
pills
phlebotomists
forty-five-minute seizure
saying goodbye
eye patch
emergency intubation
hope
20/1000 legally blind
epileptologists
missed milestones
capsules
tears
miralax
waiting rooms
frustration
headaches
potassium citrate
extreme parenting
worry
joy
melatonin
low glycemic index treatment
powders
frazzled nerves
eye surgery
zombie kid 
IVs
cod liver oil
impatience
ketogenic diet
humor
orthotics
irritability
hair loss (mine)
liver toxicity (calvin's)
walking harness
weight gain
hyperactivity
skill loss
liquids
weight loss
clobazam
broken tooth
keppra
hyperactivity
pride
apple of my eye

photo by Michael Kolster

1 comment:

  1. UGH! We have too much in common. Your little precious has been through way too much shit. Do you go to Children's in Boston? I wonder of Steven Stasheff is still in Neurology there!

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