3.12.2016

balance

We're hoping to find some balance between Calvin's number of seizures, his antiepileptic drug doses and side effects, his behavior, development and quality of life.

Today is day eleven, which means Calvin will likely make it to day twelve since suffering his last grand mal seizure, which pretty much ties his record for the longest grand mal-free stint since March of last year. And he had a surprisingly decent day today, though as we used to say, perhaps too good to be true. We'll find out by tomorrow.

Is this ever-so-slightly-longer stint due to the increase in bedtime Keppra? Is it the ever-so-slight pause in his clobazam wean? Is it that the cannabis is working better in the face of less clobazam? Is it something about the new batches of CBD and/or THCA cannabis oils?

As usual, we can never be sure, but perhaps in time things will become clearer. For now, I'll bask in the relative balance that today has offered us all.

Photo by Michael Kolster

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